The Cardiac Neurodevelopmental Follow-up Program is for children with congenital heart disease. The High-Risk Infant Follow-up Program and the Center for Disabilities and Development work together with the pediatric cardiology team for your child’s care.

Why were you asked to see us?

Your child was born with a heart that needs extra care, which often includes surgery. Because heart problems and surgery may increase the risk for developmental problems, the pediatric cardiology team at University of Iowa Stead Family Children’s Hospital recommends that your child sees the experts in the Cardiac Neurodevelopmental Follow-up Program. We will look to see how your child grows, learns, and develops. Some challenges may appear early while others appear later. The best outcomes occur when any delays are found early.

Experts can help children learn and thrive.

For infants and toddlers, your visit will take place in the Pediatric Specialty Clinic. A nurse practitioner who works with infants and toddlers with complex health histories will see your child. The nurse practitioner will ask questions about your child and observe how your child acts, talks, and moves. We will share ways to help your child learn. You will also have the opportunity to ask questions.

For preschool and school-aged children, your visit will be at the Center for Disabilities and Development. A developmental-behavioral pediatrician and a psychologist will see your child. These professionals understand how congenital heart disease and time in the hospital can affect a child’s learning and behavior will see your child. You will also have the opportunity to ask questions.

Together, we will decide if any other support or programs can help your child. We will give you information that you can share with your child’s teachers and care providers. Other experts are available to check coordination, diet, communication, and hearing, if needed.

Timeline

Below is a plan for visits with the Cardiac Neurodevelopmental Follow-up Program, based on your child’s age. The plan may change based on your child’s history.

At the Pediatric Specialty Clinic:

  • 4–6 months
  • 9–12 months
  • 18–24 months

At the Center for Disabilities and Development:

  • 3–5 years
  • 7–9 years
  • 11–12 years

Locations and Contact

  • UI Stead Family Children's Hospital
    8900 JPP
    200 Hawkins Drive
    Iowa City, Iowa 52242
    Hours
    • Monday through Friday: 8 a.m. to 5 p.m.
    Contact
    • Phone: 319-353-6880