• Charlotte Keller

    Charlotte Keller, portrait

    At 3 years old, Charlotte began experiencing severe leg pain. Tests eventually led to a diagnosis of chronic recurrent multifocal osteomyelitis (CRMO), an inflammatory bone disease. By that time, Charlotte’s quality of life was very low, and she was referred to the pediatric rheumatology team at University of Iowa Stead Family Children’s Hospital.

  • Colorado girl finds treatment she needs at UI Stead Family Children’s Hospital

    Madison Villaverde, photo

    When Madison Villaverde was diagnosed with chronic recurrent multifocal osteomyelitis (CRMO) in the third grade, her mother, Robin Villaverde, took to the Internet to research the rare disorder and search for support groups.

  • Gwen White

    Gwen White, portrait

    Gwen had been sick and weak for several weeks and had developed a rash in May 2017. She had seen several doctors but did not get a diagnosis until her dermatologist took a biopsy of the rash. Gwen was found to have juvenile dermatomyositis, a rare autoimmune disease that affects three in every 1 million children each year. In juvenile dermatomyositis, the immune system attacks blood vessels throughout the body, causing muscle inflammation. This can cause exhaustion from everyday activities like walking up stairs or lifting a backpack.

  • Abigail Hooper

    Abigail Hooper portrait

    Abby Hooper is a sweet and energetic teenager who loves to cook for her family, work in the garden, and play sports. You’d never know from looking at her that she’s battling a chronic disease.

  • Margaret Schafer

    Margaret Schafer portrait

    When Margaret was 11 years old, she started experiencing severe pain in her legs, hips, and shoulders – pain that made it difficult to get dressed or get on and off the school bus. Her local physician thought she might be having growing pains but the pain kept getting worse. In the spring of 2012, a pain specialist in Cedar Falls referred Margaret to a rheumatologist at UI Stead Family Children's Hospital.

  • Treytun Garcia

    Treytun Garcia thumbnail

    Doctors diagnosed Treytun with scleroderma when he was just 4 years old. Scleroderma is an autoimmune disease often characterized by the hardening of the skin and connective tissues.

  • Jacie Stewart

    Jacie Stewart thumbnail

    Jacie uses her art to raise awareness for the disease that once had her wheelchair bound. Read more about Jacie’s story.

  • Taytum Bell

    Taytum Bell thumbnail

    Taytum developed a rare autoimmune disease as a child but after a week of in hospital treatment is back to what she loves. Read more about Taytum’s story.