• Parent blog: Jennifer and Matthew Woodley

    Molly Woodley with her provider

    Born at 24 weeks gestation at 1 pound, our daughter Molly was diagnosed with intractable epilepsy when she was 2 1/2 years old.

  • Parent Blog: Sara Erbes

    Grayson Erbes sitting on hospital bed

    "UI Stead Family Children’s Hospital helped save Grayson’s life. Without their expertise, Grayson could’ve had a very different outcome." Sara Erbes

  • Cien Currie

    Cien Currie, portrait

    Cien was not meeting his developmental milestones in his first few months of life. One evening, he suddenly had a seizure, which led him to be hospitalized in a Des Moines hospital for a month. When his seizures continued to worsen, he was transported by AirCare to University of Iowa Stead Family Children’s Hospital, where pediatric neurologists diagnosed him with agenesis of corpus callosum (ACC) – a rare disorder where the middle of the brain does not fully form.

  • Enzo Thongsoum

    Enzo Thongsoum, portrait

    Enzo was a healthy toddler until he fell ill at 21 months old. A cold led to weeks of unexplained seizures and worsening health. He spent two weeks in his local hospital, and when he became unresponsive, he was transferred by helicopter to University of Iowa Stead Family Children’s Hospital. Pediatric neuromuscular specialists diagnosed Enzo with a rare disease, discovered in 2007, called anti-NMDA receptor encephalitis – a disease where the immune system attacks the brain – and began extensive treatment.

  • Parent Blog: Amber and Jason Miller

    Pierce Miller, portrait

    "For a mom with a child that has multiple special needs and multiple medications it’s one less thing that I have to worry about."

  • Minnesota boy is 'frequent flyer' for clinical trial at UI Clinical Research Unit

    Ben Schuster, photo

    Once a week, Ben Schussler boards a plane for his experimental treatment for Duchenne Muscular Dystrophy (DMD). This clinical trial is testing whether a new therapy will change the progression of DMD. Our researchers are working to improve the outcomes for those diagnosed with DMD.

  • Parent Blog: Leann Putz

    Anthony and Leann Portrait

    Leanne Putz came across “The Story of Ferdinand” when her son was at UI Stead Family Children’s Hospital. Over the next 12 years, the story became a source of strength.

  • Mason Gonzalez

    Mason Gonzalez, portrait

    When Mason was 6 months old, his parents noticed he wasn’t reaching certain milestones such as sitting up on his own or trying to crawl. When he was 1 year old, he woke up from a nap and unexpectedly had a 13-minute seizure.

  • Livia Jackson

    Livia Jackson, portrait

    Livia was referred to University of Iowa Stead Family Children’s Hospital by her local doctor at age 5 after being diagnosed with cyclic vomiting syndrome—a condition marked by episodes of severe vomiting and nausea.

  • Kiersten Mann

    Kiersten Mann, portrait

    After noticing that she crawled, rather than walked, up the stairs at age 3, Kiersten was referred to University of Iowa Stead Family Children’s Hospital. A pediatric neuromuscular expert diagnosed her with limb-girdle muscular dystrophy, a form of muscular dystrophy that weakens the muscles in the arms and legs.

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